'I'm going to outlive our child, there are no words'

Jack is one of only 16 children in the world with a genetic condition so rare it doesn't have a name.

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Jun 9, 2025 - 11:02
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'I'm going to outlive our child, there are no words'


Jack is one of only 16 children in the world with a genetic condition so rare it doesn't have a name.
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